Video: Melissa Hogan of Saving Case presents a Hunter Syndrome patient testimony at World Orphan Drug Congress USA 2012
Melissa Hogan of Saving Case, gave a patient testimony at World Orphan Drug Congress USA earlier this year. Melissa is the mother of Case, who is diagnosed with Hunter Syndrome (also called MPS II).
Melissa kindly provided a guest blog post about her experiences and observations at the event, which I published back in April – check it out here if you missed it in April; it’s a great read, and helps put into perspective what this is really all about – patients and their families!
Watch the video below to hear what Melissa has to case about Case’s diagnosis, treatment and prognosis. Also, hear what insights she has, as a caregiver, on the importance of:
- Awareness
- Government policy
- Pharma industry involvement
Check out the video below! My favorite quote? “If you have never seen a miracle in real life, come to my house.”
The World Orphan Drug Congress USA is North America’s largest commercially-focused orphan drug event. Download the prospectus for more information.
