Why did Janssen close the Psoriasis Facebook page?
At Mobile Pharma World Europe this week Dr Sameer Mistry from Janssen discussed the ideas and development for their Psoriasis mobile App. He also explained the reasons for the Facebook page and why they decided to close it.
Sameer explained that they set up Psoriasis Facebook page so people could share and discuss their experiences with the disease. As I am sure you are aware the press reported that Janssen decided to close the page earlier this year.
Sameer out explained that to meet with regulations and compliance Janssen were removing posts that did not comply with regulations. As time has gone by more and more people started talking about the treatments they received, which drugs they were taking and their experiences. However, these comments had to be removed. Janssen realised this is the information that patients seek when finding out about this disease and removing these comments was not benefiting the community they served. The comments and conversations that were left on the Facebook page were very bland. Janssen consulted with Psoriasis Association who can provide and allow patients to share these experiences.